Pan-Wales- Video Consulting, Inherited Bleeding Disorders Network

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Inherited Bleeding Disorder Network spans all Welsh health boards apart from Betsi Cadwaladr UHB. The Network team operate out of the Haemophilia Centre in UHW Cardiff and Singleton Hospital in Swansea. There are satellite clinics in Abergavenny which are provided by Consultants based in Cardiff. The service is WHSSC funded and the business case outlined the establishment of outreach clinics in Carmarthen, Aberystwyth and at a later date to include Betsi Cadwaladr sites. 

The project links the satellite sites to the Haemophilia Centres in Swansea and Cardiff.

The technology used is Video Consulting.

The solution is Attend Anywhere.

 

Local Authority
  • All Wales
  • Blaenau Gwent
  • Bridgend
Health Board
  • All Health Boards
  • Aneurin Bevan University Health Board
  • Betsi Cadwaladr University Health Board
Partners / funding sources

Richard Morris – Network Manager 02920 743403

 

Swansea Bay University Health Board.

Hywel Dda University Health Board.

Cardiff and Vale University Health Board.

Aneurin Bevan University Health Board.

Cwm Taf Morgannwg University Health Board.

Powys Teaching Health Board.

  • Full Project Report
  • Lessons learnt
  • Outcomes
  • Outputs

The Inherited Bleeding Disorder Service supports over 1000 known patients, the vast majority from birth to death. The patients are monitored regularly but many do not require intensive clinical input – only when trauma occurs or they have surgery. Patients are spread throughout South Wales with many having a long journey to their nearest clinic.

To support the smaller Swansea site VC could be used to establish VC MDT’s or could provide a platform for staff groups to communicate together across the Network e.g. the nurses could all meet to discuss their processes across the Network. This could also be beneficial for new staff being hired to the network outside of the current sites. VC could be used as a support tool for new staff to help them avoid travelling so much especially at the start of their roles.

 

There are about 80 patients who receive home delivery of their factor treatment. These treatments are high cost and patients are trusted to manage their condition from home. If a patient experiences a bleed then additional treatment will be needed however there is variance between each patient that can lead to sub optimal treatment (both by over treating or under treating). The correct management of these bleeds however leads to improved outcomes for patients and reduced cost. Repeated bleeds can lead to joints deteriorating and eventually surgery being required to repair the damage – VC clinic appointments could be a key tool to engage with the patients and improve their prophylaxis adherence and bleed treatment resulting in improved life outcomes and reduced future spend. 

 

Previously the Cardiff centre ran a telephone clinic to keep in touch with patients who didn’t require a visit in person to the centre. This was very well received by patients as it targeted those with the least severe condition and longest travel times. A similar approach could be made using a VC clinic. 

Change in practice for the centre to engage with patients using this technology.

Will require educating and training for patients and clinicians as well as monitoring processes to be put in place to identify patients that require VC support. 

Network Manager and admin staff to be responsible for providing local IT solutions and support to patients when first using the system.

Network Manager and admin staff to be responsible for providing local IT solutions and support to patients when first using the system.

Improved travel time for patients

Improved MDT experience for clinicians

More support for potentially isolated colleagues in the Network

Potentially a cost saving if bleeds can be treated more appropriately

Assist in facilitating the growth of the Network

Reduced travel time for staff leading to a time saving

Reduced travel costs for staff leading to a cost saving

Ability to manage increased number of patients efficiently

Potentially able to prevent some patients from attending the centre.

Number of miles saved for patients
Number of bleed treatments used per bleed before VC support versus during VC support
Bleed rate of patients before VC support versus during VC support
Joint scores of patients before VC support versus during VC support
Number of successful MDT’s – Number of hours travelling by staff saved